When my friend and I were looking for a movie to watch, I really wasn't sure I wanted to see a movie about romance and young love. Boy was I in for a surprise!
I have never paid much attention to CF before, this movie really opened my eyes to its reality, this is a genetic disorder that resulted because both parents are carriers of the CF gene. There is no permanent cure, this is a life long battle that requires daily routine treatments and care.
Director Justin Baldoni did an absolutely fabulous job depicting the real life challenges facing young people born with Cystic Fibrosis (CF). In 1962, the average life expectancy was only 10 year of age, as researchers discovered new treatments over the last 50+years, "it’s now predicted that children born with cystic fibrosis in the 2000s will survive into their 50s (source: verywell.com)"
This movie pays tribute to "Claire". Claire Wineland was a young lady born with CF, she had an indomitable spirit, she said that "Death is inevitable, but living a life that we are proud of, that is something we can actually control.", "I want people to have a moment of clarity, realizing they actually have power in their happiness."
Claire wanted to be a public speaker to inspire others, she achieved her goal before her death at the age of 21, a week after she underwent a lung transplant procedure.
A word of caution...in her pursue to help others, Claire agreed to start a YouTube channel "The Clairity Project", unfortunately the people that agreed to help her get this project off the ground ended up cheating her by stealing her story and denying her access to the channel telling her story. So, please do not watch The Clairity Project, here is the channel Claire started on her own https://www.youtube.com/watch?v=zeg83eig0BE&t=309s
Regardless of the controversies, Claire's story is one of inspiration and her determination to live life to the fullest!
Cystic fibrosis (CF) is a genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys, and intestine. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. Other signs and symptoms may include sinus infections, poor growth, fatty stool, clubbing of the fingers and toes, and infertility in most males. Different people may have different degrees of symptoms.